My biggest concern for my future is to be alone without my parents. Living my life with Cerebral Palsy requires me to have extra assistance, that’s where my parents have triumphantly pulled through every time. Knowing that one day, they will no longer be around is not only a sad …
Cale Ferrin: Charisma and Character
Cale Ferrin, actor with Fanconi Anemia, is adorable! That should be the summary of the interview. Cale is adorable! It’s definitely worth repeating. Living in Nebraska with his family, Cale’s a fifth grader with more than enough charisma to bottle up and sell for years! This is no exaggeration! Within …
Meet Bob; My Battery Operated Boyfriend
I’ve got some amazing friends and sisters. We have some of the most phenomenally deep conversations about sexual encounters with our beaus. But as an outsider, ask yourself what about sex from the perspective of a person with a disability? Well, with my group of friends and peers, it is …
Disable Your Disability Interview with Tony Jacobsen
There’s a guy named Tony Jacobsen who has my same condition, Osteogenesis Imperfecta, we met via social media because he is the guy behind Disable Your Disability. Now many of you who know me know that cutesy names regarding people with disabilities just don’t make me go woo hoo with …
One Moment Can Change Everything!
I held my breath as I squeezed the hands of the two girls next to me. My eyes were shut as I prayed silently and turned to my friend and said, “I really want this.” Right before they announced the winner I looked over and saw my mom smiling as …
Mom and Baby: No Regrets
SINGLE MOM Single and disabled is the foundation of my life. I never dreamed in a million year I’d be a mom with children and the very thought of it seemed unreachable and impossible. I was born with Osteogenesis Imperfecta Type 3, otherwise referred to as brittle bones disorder. It’s …
From a Mom to her Baby
Dear [Not-A-Baby-Anymore], One of the first questions that strangers ask when they see us together is, “Is that your daughter?” There is always an awkward pause that follows my usual response: “Actually, that’s my SON.” This unexpected answer really throws people off and their reaction is both amusing and priceless. …
A Wheelchair Wheel Conundrum
I was having one of the best conversation with a woman when I realized, once again, I was faced with an awkward moment, “The Wheelchair Wheel conundrum.” I had responded to a dating profile on an online dating site and the next thing I knew, I had been talking for …
Growing Up with Death
Growing up with Death sounds so weird, right? How can I possibly grow up with Death, something that is the total opposite? But that’s how I feel. Death has been in my life since I was in kindergarten. If you’re immersed in the world of people with physical disabilities, death …